I am not in the medical field, just a mum that wants to research and find as much information as I can to help my son and others that are afflicted with this very very rare sarcoma.
The information and links on this site are simply what I have found whist researching and are by no means conclusive or mean't to provide any medical advice. For that you must find a hospital that specializes in Sarcoma. These usually have multidisciplinary teams that will work together to provide you with good medical care.
What I do know is that sarcomas are very rare and most GP's will only see a few in their entire career.